Organizations and Resources
“Support isn’t a sign of weakness. It’s one of the most important forms of care we can offer each other.”
Arlieta Hall, Comedian and Certified Dementia Communication Specialist
Below are organizations and resources for caregivers, aging adults, people living with dementia, healthcare professionals, and communities who want to learn more.
A diagnosis changes everything, but it doesn’t end your story. These organizations and tools are built for people living with dementia and Alzheimer’s to help them stay connected, informed, and in control of their journey.
Organizations
Alzheimer’s Foundation of America (AFA)
Provides free helpline support, memory screenings, educational resources, and virtual programs for individuals living with Alzheimer’s and other dementias. Holds SAGECare’s Platinum LGBTQ+ credential for inclusive care.
alzfdn.org | Helpline: 866.232.8484
Alzheimer’s Association
The largest nonprofit funder of Alzheimer’s research in the world, providing 24/7 support, a national helpline, local chapters, support groups, and the ALZNavigator™ tool to guide people through next steps after a diagnosis. Available in English and Spanish.
alz.org | Helpline: 800.272.3900
Resources
ALZNavigator™ (Alzheimer’s Association)
A free online tool that asks a few questions and guides people newly diagnosed or their care partners to personalized next steps, resources, and local services.
alz.org/alznavigator
My ALZ Journey® App (Alzheimer’s Association)
A free mobile app offering support, local resources, and guidance for people newly diagnosed with Alzheimer’s or another dementia and their care partners.
alz.org/help-support/resources
Whether you’ve been caregiving for a week or a decade, these organizations exist to support, train, and advocate for you. You are not invisible.
Organizations
Family Caregiver Alliance (FCA)
One of the oldest and most trusted caregiver organizations in the country. Provides expert resources, tip sheets, support groups, care navigation tools, and the CareNav dashboard to manage caregiving in one place. Over 40 years of serving family caregivers.
caregiver.org
Caregiver Action Network
The nation’s leading family caregiver organization focused on advocacy, education, and community. Offers the Care Community online forum, resources for Alzheimer’s caregivers, and a sandwich generation caregiving guide.
caregiveraction.org
Resources
Caregiving in the U.S. 2025 (AARP & National Alliance for Caregiving)
The most comprehensive national dataset on family caregiving, including demographics, financial impact, workplace effects, and policy needs. Free to download. Essential reading for caregivers and advocates.
aarp.org/pri/topics/ltss/family-caregiving/caregiving-in-the-us-2025/
Eldercare Locator (U.S. Administration on Aging)
A free public service that connects caregivers to local resources, adult day services, transportation, meal delivery, legal assistance, and more, anywhere in the United States. Search online or call toll-free.
eldercare.acl.gov | 800.677.1116
Black caregivers carry a disproportionate share of the dementia caregiving burden with fewer resources, less support, and a healthcare system that has not always shown up for them. These organizations are working to change that.
Organizations
AfricanAmericansAgainst
Alzheimer’s (A3)
The nation’s first organization dedicated to building a coordinated national response to Alzheimer’s disease in the African American community. Mobilizes communities, promotes early detection, engages political leaders, and produces the award-winning play Forget Me Not.
usagainstalzheimers.org/networks/african-american
ACTS2 Project (African-American Alzheimer’s Caregiving Training and Support)
A faith-based, skills-training, and support program specifically for African American dementia caregivers in distress. Provides services rooted in community and spiritual life — meeting Black caregivers where they are.
acts2project.org
Resources
Alzheimer’s Association: Black Americans & Alzheimer’s Resource Hub
A dedicated resource page with information on risk, diagnosis disparities, clinical trials, caregiver support, and community programs tailored to Black families, including video panels featuring Black men and women living with dementia.
alz.org/help-support/resources/black-americans-and-alzheimers
Alzheimer’s Association 2025 Health Equity Impact Report
Documents the Association’s wide-ranging work addressing health disparities in communities of color, including Black and Latino communities. Includes data on access to care, clinical trial participation, and targeted programming.
alz.org/news/2025/alzheimers-association-2025-health-equity-impact-report
Latino and Hispanic families are among the most dedicated caregivers in the country, often caring longer, more intensively, and with fewer formal resources than any other group. These organizations see that and speak to it directly.
Organizations
LatinosAgainstAlzheimer’s (UsAgainstAlzheimer’s)
Marshals resources and action to address the growing impact of Alzheimer’s on the nation’s 55 million Latino families. Leads strategic convening, coalition building, legislative advocacy, and culturally tailored brain health education.
usagainstalzheimers.org/networks/latinos
Salud America
A national network creating culturally relevant health content and research for Latino communities. Regularly publishes data and analysis on the critical state of Alzheimer’s and dementia in Latino families, in both English and Spanish.
salud-america.org
Resources
Brain Health Conversation Guide — Spanish Edition (National Alliance for Caregiving)
A bilingual guide developed in collaboration with the Alzheimer’s Foundation of America to help families navigate difficult conversations about memory changes and cognitive health. Available in English and Spanish.
caregiving.org
Alzheimer’s Association: Hispanic/Latino Resources
Bilingual resources for Hispanic and Latino families, including information on risk, care, clinical trials, and the ‘Some Things Come with Age’ public awareness campaign. Includes materials developed in partnership with Ad Council.
alz.org/help-support/resources/hispanics-latinos-and-alzheimers-disease
LGBTQIA+ caregivers often navigate a system that wasn’t designed for them, caring for chosen family, partners not recognized by law, and community members who face discrimination even in care settings. These organizations are building the infrastructure that should have always existed.
Organizations
SAGE (Services and Advocacy for GLBT Elders)
The world’s oldest and largest organization dedicated to LGBTQ+ older adults. Operates the National Resource Center on LGBTQ+ Aging, the country’s first technical assistance resource center for LGBTQ+ elders. Offers the HearMe mental health support app and SAGECare professional training.
sageusa.org | National Resource Center: lgbtagingcenter.org
Alzheimer’s Association LGBTQ+ Resources
Provides a dedicated resource hub for LGBTQ+ people living with dementia and their caregivers, including the ALZConnected online forum with a dedicated LGBTQ+ community space, webinars, and resources co-developed with SAGE and the Human Rights Campaign Foundation.
alz.org/help-support/resources/alzheimers-and-dementia-resources-for-lgbtq-commun
Resources
Facing the Future Together (SAGE & Human Rights Campaign Foundation)
A comprehensive guide developed specifically for LGBTQ+ older adults and their caregivers — covering FAQs, legal guidance, care planning considerations, and community resources in one place.
Available through sageusa.org and HRC Foundation
AARP Dignity Survey: LGBTQ+ Older Adults & Caregiving (2024)
The most current national data on LGBTQ+ caregiving experiences, including rates of caregiving, emotional stress, social isolation, and access to supportive services. Free to download.
aarp.org/caregiving/local/lgbt-resources/
Caring for aging parents while raising children is one of the most time-compressed, financially strained, and emotionally complex caregiving experiences that exist. You are allowed to need help too.
Organizations
Mental Health America (MHA)
Provides practical guidance, mental health resources, and a detailed guide for sandwich-generation caregivers navigating the emotional, relational, and logistical challenges of dual caregiving.
mhanational.org/resources/caregiving-and-the-sandwich-generation/
AARP Family Caregiving
Offers comprehensive support for sandwich generation caregivers, including financial planning resources, the Family Caregiving Discussion Group on Facebook, workplace advocacy resources, and the AARP Care Guide.
aarp.org/caregiving
Resources
Supporting Caregivers in the Workplace (American Psychiatric Association Foundation)
A practical guide for employers and employees navigating caregiving while working, covering flexible scheduling, caregiver benefits, mental health support, and the unique pressures facing the sandwich generation. Free to download.
workplacementalhealth.org
Lotsa Helping Hands
A free caregiving coordination platform that helps sandwich generation caregivers organize family and community support, scheduling, task delegation, and communication in one place. Reduces the burden of managing care for multiple people simultaneously.
lotsahelpinghands.com
Clinicians and social workers are on the front lines of dementia care, often holding together patients, families, and systems all at once. These resources are built to support the people who support everyone else.
Organizations
National Institute on Aging (NIA)
The federal government’s primary source of dementia research and professional resources. Offers toolkits for cognitive assessment, care planning guides, billing code guidance for dementia services, and continuing education for clinicians across disciplines.
nia.nih.gov/health/health-care-professionals-information/alzheimers-and-related-dementias-resources
Center to Advance Palliative Care (CAPC)
Provides a comprehensive Dementia Care Best Practices toolkit for clinicians and health systems, including care planning tools, case studies of evidence-based care models, and a full online CE curriculum on dementia care and caregiver support.
capc.org/toolkits/dementia-care-best-practices/
Resources
KAER Toolkit (Gerontological Society of America)
A four-step process toolkit for detecting cognitive impairment and achieving earlier dementia diagnoses in primary care settings. Evidence-based, clinically tested, and designed to be practical across care settings.
geron.org
Improv for Clinicians & Social Workers: Stomping Ground Comedy Theater
A therapeutic improv program offering workshops specifically designed for healthcare professionals and social workers, building communication, presence, and resilience skills using the same improv techniques that benefit dementia caregivers.
stompinggroundcomedy.com
Comedians and improvisers have always held space for hard truths and impossible situations. Finding Your Laughter is evidence that this community has a role in the caregiving conversation, and these resources show that work is already underway.
Organizations
ComedyCures Foundation
A nonprofit dedicated to therapeutic comedy for patients, caregivers, and frontline workers. Offers programming, research, and interactive experiences grounded in how a comedic perspective can shift health outcomes, specifically including caregiver support.
comedycures.org
Hilarity for Charity (HFC)
A nonprofit co-founded by Seth Rogen and Lauren Miller Rogen that engages the next generation of Alzheimer’s advocates and caregivers through entertainment and community. Runs Caregiver Lounges, CareCon, and youth brain health education programs.
hilarityforcharity.org
Resources
“Just Join Them”: Improv and Dementia Care (Kemp et al., Journal of Applied Gerontology, 2024)
Peer-reviewed research demonstrating how improv theatre skill development improves dementia care , offering evidence-based language and framework for comedians and improvisers who want to bring their skills into caregiving spaces.
doi.org/10.1177/07334648231203195
Improv for Life – Stomping Ground Comedy Theater (Dallas, TX)
Therapeutic improv workshops designed for caregivers and people living with dementia, developed by a director whose own father had early-onset dementia. Offers a model for how comedy spaces can serve communities beyond the stage.
stompinggroundcomedy.com/improv-for-life